Training V - a life long commitment

My wife has two cards. The challenge for V is to sort lego pieces by color.

It´s easy to forget. He runs so fast now. He knows how to clear away his glass and plate after dinner. He can clap his tiny hands when they sing "clap your hands" on the DVD. Yes, he´s learned a lot.
But he is still behind. Very much. And will always be.

We know that the lack of myelin in V´s brain slows his learning down. Therefore we need to teach him things that a normal brain learns almost by itself. Like walking, talking and crawling. But sometimes it´s easy to forget.

The play therapist had a few tips. We are to start hiding things from V. But we´ll show him where we hide them. Then we "forget" about them for ten minutes or so, then we tell V to look for it. That will trigger his "Working Memory".

And the color thing above. My wife did it today. V started to sort blue and red lego pieces and the first five were right. Then he started to mess around. Maybe he got tired of the boring game. Or maybe he has no clue. It´s hard to say.

We also have a schedule with exercises for his electronic toothbrush - outside his mouth. That will hopefully stimulate V´s nerve cells around his mouth to evolve and in the end help his speech.

There´s plenty to do. It´s a long way to go. It´s not always easy. But there´s no alternate route. This journey has to be done and every milestone we reach we celebrate even more.

But damn - it´s hard somedays.