My wife attended at a lecture last week about small children (age 0-4) with brain diseases. I was going to as well, but then V caught a cold and I stayed home with him instead.
One of the things Katarina Lindström, children neurologist, said was that children with brain disease often has problems with loud noise. It´s very common among people with autistic syndromes but also with lots of other brain related diseases.
We also found out that there is a swedish "group" of children with White Matter diseases. Good. We often feel alone when we meet other parents that have disabled children. They usually have Downs Syndrome or Cerebral Pares. But V has just Hypomyelinisation. That´s odd, even among disabled people...
But within this White Matter Group there are others that we could learn from or get support from I guess. Hope.
Katarina Lindström also said a few words about the brains special ability to take shortcuts. The placticity of the brain. If you stimulate the brain properly it can develop abbilities in new places, especially if it is a young brain.
So the pressure is on. And it´s on us - the parents. Stimulate V in the right way and he´ll become less disabled.
I guess that´s what I did when I took him for a spinn with the vacuum cleaner today. At least a bit.
And that´s how we´re going to do it. Bit by bit.
And the house will get cleaner and cleaner!
V is making great progress! He seems like such a sweet kid.
ReplyDeleteThank you. Yeah he is. Most of the time!
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