Latest Neurological Studies

Yesterday we had our yearly meeting with the neurologist that has the big picture about V. She ordered the MRI-scan that showed that he has the lack of myelin in the first place. That was almost 18 months ago.

 

She was very happy to see V again. And she didn´t think that we need to do another MRI right now. Maybe when he´s 7 or 8 years old. She won´t be able to see anything else, anything more right now.

And the neurologist also said that she is convinced that V will be able to speak. Two things made her say that:

• V has broken the code to sign language. He understands that a sign means something and that different signs stand for different things. (He now can make 60 signs by himself, and understands even more)
• V has a few words that he can speak, though not so clear. Mommy and Daddy are the two that really works, but sometimes he says some occassional words.

Judgeing from her own expierency of children with similar difficullities and abillities chances are pretty good that V will learn the art of speaking.

Then the neurologist said one thing that was... both good and bad in some strange way.

She said that V has developed better than she first had feared.

That was nice to hear. V is doing pretty well. But on the other hand - it meant that the neurolgist had feared something that she hadn´t told us.
Maybe that´s good. But now I wonder what she fear now? What is she really thinking about V?
Is she holding back?

And at the same time I know that she can´t tell us about her thoughts and feelings - just her medical opinions based on some kind of facts. And that´s the way it should be.

It´s just that... I want every single answer to the enigma V is.

Frustration - and relief at the hospital.